You Don’t Look Sick: Coping with the Invisible Burden of Chronic Illness

Living with a chronic illness is a daily challenge. Not only are you struggling with physical symptoms, but there is also an emotional toll as well, and sometimes even judgment by the people in your life. 

This can be especially true for “invisible” illnesses, wherein the outward or visible symptoms are not always apparent to others. People may think, "Well, that person doesn’t look sick.” Some examples of these invisible illnesses might include Lupus, Lyme disease, Fibromyalgia, or Multiple Sclerosis, to name a few. Chronic pain, exhaustion, or general discomfort may be suffered without those around us ever knowing. This can be isolating, leaving those suffering with the feeling they are misunderstood, potentially leading to depression, anxiety, or grief. 

However, you are not alone. 

Coping with a chronic illness is difficult, especially if it develops suddenly or later in life, because, in some ways, you are not the person you used to be. You may not be as carefree or have the same level of energy. You may not be able to exercise or socialize like you once did. You might have to cancel plans or leave social events early, simply out of exhaustion. You might have memory impairment, dietary restrictions, and sleep disturbances, and some days, it may be difficult just to get out of bed. You may struggle to remain positive, but you have the right to mourn the person you once were. All your feelings are valid, and some days, what you can do is all you can do, and that is perfectly fine. 

However, it is possible to draw on your strengths and not solely focus on your weaknesses or what you have lost.  You can be angry and feel it is unfair to have an illness while also making peace with it. These two opposing beliefs can exist simultaneously, and both can be true.  

Although it can be difficult to see, in some cases, new health challenges bring gains. You may experience increased empathy because you can relate to others' physical and emotional pain. You know what it is like to struggle. Relationships can deepen if you are willing to be vulnerable and share your experiences and feelings. You might become more in touch with your spirituality, and life can feel more meaningful and precious.  You have an opportunity to increase your resilience and adaptability through your health challenges. In short, you dig deep and discover who you are and what you are made of. 

To all of you living with a chronic illness, I see and hear you. I may not know exactly how you feel because no one does. That space is reserved for you and you alone. Your experiences are as unique as you are, but talking about them can help. 

Some find solace in coping with their own chronic illness using humor and the acceptance that there are things that one can control and things one cannot. It can be a daily battle to untether yourself from worrying about what you cannot control, but in order to preserve your mental health and remain positive, it is essential. 

You can do your own research, ask your doctor questions, voice your concerns, make positive lifestyle changes, ask for referrals, and look into alternative treatments. You are not your limitations, and your illness does not define you. Rest when needed, do what you love, remember to laugh, focus on gratitude, and never let anyone break your spirit. 

Life is a gift, and you are still here, so do your best to enjoy it.

If you’re navigating life with a chronic illness and feeling overwhelmed, you don’t have to go through it alone. At Compassionate Healing, we offer a safe and supportive space to process your emotions, find your strength, and build a new sense of balance. Reach out today to begin your journey toward healing and peace.

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